Publicaties
Wetenschappelijk onderzoek
Curavista investeert in onafhankelijk onderzoek, omdat wij transparantie belangrijk vinden. Wat gebeurt er met de data van burgers? Wat zijn de resultaten en waarom? Dat is onze maatschappelijke bijdrage aan een duurzaam zorgstelsel. We werken hierin samen met universiteiten en hogescholen.
Analyses
De onafhankelijke stichting Infometer ziet erop toe dat de gegevens anoniem worden aangeleverd voor de analyse en dat de analyse conform de specifieke toestemming behorend bij een eCoach is.
2024
Ziektelastmeter Chronische Aandoeningen Gaat Over De Grens
This project evaluates the efectiveness of the Dutch ABCC tool adapted for the South Tyrol’s general practice settings.
2023
App-op-recept: Vertigo Training
Vestibular rehabilitation is a safe and effective exercise-based treatment for patients with chronic vestibular symptoms. However, it is underused in general practice. Internet-based vestibular rehabilitation (Vertigo Training), which has proven to be effective as well, was developed to increase uptake.
Drug Rediscovery
Sustained corticosteroid-free clinical remission over 12 months was achieved in 45% of IBD patients on monotherapy with thioguanine. A drug continuation rate of 80%, together with favourable PGA and QoL scores, underlines the tolerability and effectiveness of thioguanine for IBD.
Internationale Inzet
This study will provide much needed insights in disease trajectories of the different subgroups of patients with PF. Simultaneously, the I-FILE study will yield valuable information on the use and feasibility of home-based data collection. This international patient-led registry will facilitate trans-border collaboration to further optimize care and research for patients with PF.
2022
Telemonitoring vs Regular Care
The idea behind using MPVC is that MS patients will gain more insight into the individual course of the disease and get a better grip on their symptoms. This knowledge should increase their autonomy, give patients more control of their condition and enable them to better and proactively interact with health care professionals. As the consulting process becomes more efficient with the use of MPVC, MS-related problems could be detected earlier, enabling earlier multidisciplinary care, treatment or modification of the treatment. This could have a positive effect on the quality of life for both the MS patient and his/her partner/informal caregiver, reducing health and social costs.
Telemonitoring bij Post-Covid
Six months after hospital admission for COVID-19, patients’ lung function and quality of life were still improving, although fatigue persisted. Home monitoring enables detailed follow-up for patients with COVID-19 at low burden for patients and for the healthcare system.
Telemonitoring bij Post-Covid
During the first 6 months after hospitalization for COVID-19, most patients demonstrated continuing recovery across all health domains, but persistent sequelae were frequent. Fatigue was the most frequent residual and persistent symptom up to 6 months after hospitalization, importantly impacting HR-QoL.
Eenvoud in PROMs
VAS scores significantly correlate with validated PROMs in IPF and are reproducible over time. Because of their simplicity, visual analogue scales have the potential to be used for systematic evaluation of disease course in trials and daily practice.
Profilering bij Post-Covid
Due to these specific risk factors, it might imply that behavioral aspects are pivotal in primary prevention of Post-Covid.
2021
Kosteneffectiviteit
App-based treatment is a viable alternative to care-as-usual for UI in primary care in terms of effectiveness after 1 year.
Hoge Adherentie en Satisfactie
Home spirometry using an online home monitoring application is feasible in patients with SSc-ILD, with high adherence and patient satisfaction. Larger long-term studies are needed to assess whether home spirometry can detect the progression of ILD in patients with SSc.
Post-Covid Meetinstrument
Introducing the ABC-19 Tool: people can and will use it.
Transmurale Samenwerking
The ePHE in our study is the first step in overcoming these barriers. Nevertheless, this strategy needs further development because of the large number
of “lost to follow up” and missing data. Adding a coordinating case manager to this personal digital environment strategy may be of additional value. Another option could be a financial incentive for general practitioners, providing specific education for professionals and introducing ePHE in the management and transition of care.
Hybride Zorg is Effectief
It is shown that COPD patients used the platform more frequently in a blended care setting compared to patients who used the eHealth platform independently, adjusted for age, sex and disease burden. Blended care seems essential for adherence to eHealth programs in COPD, which in turn may improve self-management.
2020
Patiënt Veiligheid
Ontdekken van Minimal Clinical Difference
The present study showed that a change of at least 3.5 points in the patients’ SFNSL score represents a clinically important difference, in that the SFN‐related symptoms showed a relevant increase or decrease. Some caution is warranted for the use of the MID in individual cases in the clinic, as the SDC was found to be higher than the MID.
Longtransplantatie en Spirometers
In conclusion, online home monitoring with direct data transfer is feasible and reliable after lung transplantation and results in high patient satisfaction.
RCT Bewijst: Individueel Maatwerk via Thuismonitoring
The results of this first-ever eHealth RCT in IPF showed that a comprehensive home monitoring program did not improve overall HRQOL measured with K-BILD but tended to improve psychological well-being. Home monitoring was greatly appreciated by patients and allowed for individually tailored medication adjustments.
Ontdekken van Klinisch Relevante Verschillen
For daily care, we believe that differences between morning and afternoon FVC are too small to have an impact on serial changes and on treatment decisions.
Patiënt Empowerment
The results suggest that for first-time users of the MSmonitor program and their health care providers, it may not be justified to expect a short-term improvement in empowerment in terms of self-efficacy, self-management, autonomy, or participation. Furthermore, a lack of effect on empowerment is not because of nonusage of the program components.
Medicatie Instellen en Gebruik
Patient experiences and satisfaction with antifibrotic treatment were fairly positive, and similar for nintedanib and pirfenidone. Systematic evaluation of patient expectations, experiences, and satisfaction with medication could enhance shared-decision making and guide drug treatment decisions in the future.
2019
Meerdere Devices en Modules Werkt Goed
In conclusion, a comprehensive home monitoring program is feasible and can be used in sarcoidosis research. Home monitoring could also be attractive for use in daily care, though studies are needed to evaluate its role and additive value. Potentially, home monitoring may enable timely recognition and response to changes in symptoms, lung function, and activity. Especially in a heterogeneous disease such as sarcoidosis, home monitoring may pave the way for better individually tailored treatment, enhanced self-management, and improved quality of life.
Maak een Persoonlijke Experience
This smartphone app providing diabetes self-management education and support had small and clinically not relevant effects. Apps should be more personalized and target individuals who think the app will be useful for them.
COPD Module Scoort Goed in Vergelijking
Mijn copd online (module on Gezondheidsmeter) is “green” as one of 13 applications available.
2018
Empowerment
Door het gebruik van de FitBit wordt er een betere gezondheid ervaren door chronisch zieken en kan de ziekte beter gemanaged worden.
Personalized journey is key
Our results indicate that disease-independent personal factors are central in the use of an online SMP in routine care and should be taken into consideration in future research.
Feasible en gewaardeerd, óók bij ouderen
A home monitoring program including wireless home spirometry, is highly feasible and appreciated by patients with IPF, and enables real-time detection of change in FVC and PROs facilitating personalized care.